Project Documents

The ANZ MRDR Project Outline: This document details the aims of the MRDR including hypotheses, inclusion criteria, data and data collection methods, analyses, reporting and communication.

Quick Reference Guide: This short document summarises the diagnostic criteria, schedule of assessments and reviews plus recaps the ethical requirements.

Patient Information Brochure: Informs the patient about the registry and contains information regarding opting off. Providing the patient with this document is an ethical requirement.

Project Information Sheet: This document introduces the MRDR to patients, clinicians and the broader public. Some sites have also distributed these at relevant seminars. They cannot be used as opt-off documents. Contact the research team if you would like copies sent to your site.

Data Access and Data Management Policies: These documents specify the MRDR’s data access and data management policies.