Myeloma and Related Diseases Registry (MRDR)

We support Rare Disease Day, Tuesday February 28, and send a big thank you to all patients, research staff, and clinicians for your participation and support 😊. Find out more below.

Rare Disease Day

This clinical quality registry aims to improve myeloma outcomes by providing an evidence base for the best strategies to diagnose, treat and support people with myeloma and related diseases.

What is the registry?

Learn about how the registry works and the data we collect.
Benefits

Participation in the registry provides advantages for sites and patients.
About our projects

Find out about MRDR projects and how registry data is being used.
8015

Patients accrued

5757

Patients with multiple myeloma

59

Number of approved sites

733

M1000 Biobank participants

Latest news

Rare Disease Day 2025
19 Feb 2025

Rare Disease Day is next week on Friday 28th February!

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MRDR reaches 8,000 patients!
06 Feb 2025

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New MRDR Publication
08 Nov 2024

An MRDR paper investigating the presence of 1q21 gain and amplification on outcomes in Daratumumab-treated MM patients has now been published!

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MRDR Annual Breakfast Meeting - Recording Available
07 Nov 2024

The recording of the meeting is now available to those who may have missed out!

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Participating organisations