The MRDR had a productive Blood 2019 conference in October. The registry interest group breakfast was well attended with 65 attendees representing patient groups, clinicians, researchers, hospitals, industry, and other collaborators. Attendees enjoyed an update on progress of the MRDR by Dr Brad Augustson, the latest data including treatment patterns and sequencing by Dr Jessie Zhao, examples and suggestions on how to use your site data reports by Tracy King, and latest developments in the Asia-Pacific MRDR (APAC MRDR) and the Australasian Myeloma Research Consortium (AMaRC) by Professor Andrew Spencer. This was followed by lively registry-based questions and discussion.
The MRDR was also well represented in the conference program with 3 oral presentations that showed the breadth of use of registry data:
- Treatment patterns and sequencing in multiple myeloma (MM) by Dr Jessie Zhao (winner of a Snowdome award for this presentation);
- Pacific Islanders with MM in New Zealand: differences in characteristics, treatment and outcomes compared to the rest of the NZ MM cohort, by A/Prof Hilary Blacklock;
- Results of My-PROMPT: a pilot randomised controlled trial to test the feasibility of real-time feedback of patient-reported outcomes to clinicians treating patients with MM, by Dr Elizabeth Moore.
The registry was also represented in the Monash University booth in the conference Exhibition Hall at breaks to promote the MRDR and attend to any queries.